Firefighters Come Together to Help Boy With Rare Disorder

Wethersfield volunteer firefighters are coming together to support a little boy who has a very rare disorder and the community is coming together to raise money for the family.

Charlie has Hemophagocytic Lymphohistiocytosis. It is a rare condition in which the body makes too many activated immune cell, according to the U.S. Department of Health & Human Service.

The treatment for HLH includes many rounds of steroids and chemotherapy and it takes a huge toll, but Charlie is a fighter and tough as nails, the post from the fire department says.

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“Charlie, your courage, strength and determination to fight and win this battle is an inspiration to all of us at the WVFD. Remember you are one of us now and we are holding a place for you among our ranks for when you turn 18.”

A GoFundMe page has been set up with a goal of raising $40,000. As of 1:30 p.m., more than 400 people had donated in excess of $34,000.

To donate or learn more about Charlie, see the GoFundMe page.